The Elifar Foundation has funded a powered wheelchair costing £4,500 for 13 year old Willow to enable her to cope with life at her large mainstream secondary school.
Willow has MPSI Hurler disease, a rare genetic condition that is progressive and life-limiting, causing damage to organs and the skeleton. She has had a bone marrow transplant which has improved her symptoms but Willow still experiences constant pain, poor balance and cannot walk more than a few metres.
The chair also helps Willow to do more activities outside of the home with her family and to attend Girl Guides and swim after school.
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